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Manufacturing My Miracle

One Woman’s Quest to Create her Personalized Gene Therapy
By Jill Dopf Viles
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Brief Description
Who lives? Who dies? Who decides? One woman’s quest to save her family from a rare hereditary disorder and what it means for our collective genetic future. In Manufacturing My Miracle, Jill Dopf Viles becomes her own researcher to solve the genetic mystery that has plagued... Read More
Format: Hardback
$5500
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Who lives? Who dies? Who decides? One woman's quest to save her family from a rare genetic disorder and what it means for our collective genetic future

Who lives? Who dies? Who decides? One woman's quest to save her family from a rare genetic disorder and what it means for our collective genetic future

Book Hero Magic formatted this description to make it easier to read. While it's new and still learning, it may not be perfect - your feedback is welcome! Description

Who lives? Who dies? Who decides? One woman’s quest to save her family from a rare hereditary disorder and what it means for our collective genetic future.

In Manufacturing My Miracle, Jill Dopf Viles becomes her own researcher to solve the genetic mystery that has plagued generations of her family. She discovers a link to Olympic hurdler Priscilla Lopes Schliep, and, as gene therapy costs $4.25 million per treatment, she miraculously develops her own for a mere $1,500. With her personalised cure stored in her freezer, the most critical decision becomes: should she risk her health to save her family or wait for an industry unlikely to prioritise ultra-rare diseases?

Book Details

INFORMATION

ISBN: 9781538197226

Publisher: Bloomsbury Publishing Plc

Format: Hardback

Date Published: 18 September 2025

Country: United States

Imprint: Rowman & Littlefield

Audience: General / adult

DIMENSIONS

Spine width: 20.0mm

Width: 146.0mm

Height: 218.0mm

Weight: 420g

Pages: 224

Collections

Biography & Memoir Education & Reference Health & Wellness Jill Dopf Viles Non-Fiction Self-Help & Personal Development

About the Author

Jill Dopf Viles (1974-2025) pursued her B.S. at Drake and Iowa State University in the field of biology/genetics. Vile's researching scientific clinical literature resulted in self-diagnosing herself and her father with Emery-Dreifuss muscular dystrophy (EDMD). She later received a master's in creative writing from Iowa State University and was an annual attendee of the University of Iowa Summer Writing Festival. In the course of researching her book Manufacturing My Miracle on her family's rare muscle disorder, she collaborated with scientists at the University of Iowa performing gene therapy on mutant fruit flies. Her writing appeared in John Hopkins Magazine, and her scientific work was published in medical journals Gene, Cells, and Science Advances. Jill lived in rural Iowa with her husband, Jeremy, and a lively golden retriever, Yoshi. Learn more about Jill at Jill lived in rural Iowa with her husband, Jeremy, and a lively golden retriever, Yoshi. Learn more about Jill on her website: Diyscientist.

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